We have evolved into RARECARENetBuilding on the experience of RARECARE and, in collaboration with RCE and many others.
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RARECARE will estimate the burden of rare cancers in Europe. Its aim is to provide an operational definition of “rare cancer” and a list of cancers meeting that definition. Then the project will provide cancer burden indicators (incidence, survival, prevalence and mortality), based on population-based cancer registry data, on rare cancers across Europe.
RARECARE will assess the quality and comparability of rare cancer data between cancer registries. The project develop strategies for the diffusion of information among all the key players involved in Europe-wide surveillance on and treatment of rare cancers (clinicians, patients, health planners and researchers).
RARECARE is co-funded by the European Commission (EC) from 01/04/2007 to 31/03/2010 through its Public Health and Consumer Protection Directorate (DG SANCO), PHEA programme, and contributes among other projects to the creation of networks of action for rare diseases.
The Fondazione IRCCS Istituto Nazionale dei Tumori (Milan, Italy) is the leading organization and more than 15 European Institutions and Organizations participate in the project as associated or collaborating partners.
This project is supported by the Executive Agency for Health and Consumers (EAHC) of the European Commission