Work Package Information
Coordination of the project (WP 1)

 

  • Fondazione IRCCS "Istituto Nazionale dei Tumori", Milano, Italy
Gemma Gatta
Project Leader
      Samba Sowe
Scientific & Financial Secretary
Annalisa Trama
Project Co-Ordinator

Dissemination of the results (WP 2)

 

Ian Kunkler
WP Leader
   

  • The University of Edinburgh, Scotland, United Kingdom
    • David Perry
    • Graeme Heron
    • Carolyn Brock
    • Angela Noble

  • Lund University Hospital, Sweden
    • Torgil R Möller

  • Institute of Oncology Ljubljana, Slovenia
    • Maja Primic Žakelj

  • European Cancer Patients Coalition, Belgium
    • Michaela Geissler
    • Jan Geissler

Evaluation of the project (WP 3)

 

Michel Coleman
WP Leader
   

  • London School of Hygiene & Tropical Medicine, United Kingdom
    • Yuki Alencar

  • European Cancer Patients Coalition, Belgium
    • Jan Geissler

  • Global GIST Network, Germany
    • Markus Wartenberg

  • Karolinska Institute, Sweden
    • Ulrik Ringborg

Definition and list of rare cancers (WP 4)

 

Angelo Dei Tos
WP Leader
   

  • Azienda Ulss N.9 Regione Veneto, Italy
    • Joanne Fleming
    • Annamaria Ciaglia

  • Istituto Nazionale Tumori, Milan, Italy
    • Franco Berrino
    • Lisa Licitra
    • Paolo G Casali

  • Lund University Hospital, Sweden
    • Torgil R Möller

  • National Cancer Registry Board, Ireland
    • Sandra Deady
    • Harry Comber

  • Public Health Department, Institut Gustave Roussy, France
    • Ellen Benhamou
    • Arnaud Forest

  • European Network for molecular and pathological studies on bone tumors
    • Pancras Hogendoorn

  • Côte d’Or Digestive Cancer Registry
    • Jean Faivre

  • Experts for the definition of rare cancers / rare cancers list

Health indicators: incidence, survival and prevalence (WP  5)

  

Renee Otter
WP Leader
   

  • Comprehensive Cancer Centre the Netherlands (IKNL)
    • Sabine Siesling
    • Jan Maarten van der Zwan

  • Istituto Superiore di Sanità, Italy
    • Riccardo Capocaccia
    • Arduino Verdecchia
    • Roberta De Angelis
    • Holger Lenz
    • Sandra Mallone
    • Andrea Tavilla

  • National Cancer Registry Board, Ireland
    • Sandra Deady

  • RARECARE Cancer Registries

Cancer registries and rare cancers: quality of data,  supplementary information (WP 6)

 

Carmen Martinez
WP Leader
   

  • Escuela Andaluza de Salud Pública, Spain
    • Maria-José Sánchez-Pérez
    • Juan-Manuel Melchor

  • Istituto Superiore di Sanità, Italy
    • Roberta De Angelis

  • Lund University Hospital, Sweden
    • Torgil R Möller
    • Gertrud Andersson

  • Institute of Oncology Ljubljana, Slovenia
    • Maja Primic Žakelj
    • Silva Kristancic

  • Hospital Macarena, Spain
    • Juan Antonio Virizuela-Echaburu
    • Ricardo Gonzalez-Campora

  • Geneva Cancer Registry, Switzerland
    • Jean Michel Lutz

  • Ferrara Cancer Registry
    • Stefano Ferretti

  • PIEDMONT CANCER REGISTRY, PROVINCE OF BIELLA
    • Adriano Giacomin

  • RARECARE Cancer Registries