RARECARE Cancer List

The attached document provides a definition of rare cancers and explains the criteria used for defining the cancer entities shown in the list.

Rationale and Questions for Consensus - download PDF

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List of Rare Cancers

This is the list of tumour entities from which rare tumours are identified as those with incidence less than 6 per 100,000 persons / year. The list presents the number of cases reported by European cancer registries during the period 1995-2002 and the corresponding incidence rates. Both figures are derived from the data of 70 population-based cancer registries adhering to the RARECARE project.


This list includes information on all cancers
defined by the RARECARE project. Please note that rare cancers are only those with an incidence of <6/100.000

Download RARECARE List Excel spreadsheet

Experts for the Definition of Rare Cancers / Rare Cancers List - download PDF

Rare Cancers List Endorsers

  1. Childhood Cancer Research Group, http://www.ccrg.ox.ac.uk

  2. CML Advocates Network, http://www.cmladvocates.net

  3. EUROPA DONNA - The European Breast Cancer Coalition: www.europadonna.org

  4. European Association for Cancer Research (EACR), http://www.eacr.org

  5. European Association of Neuro-Oncology (EANO), http://www.eano.eu

  6. European Association of Nuclear Medicine (EANM), http://www.eanm.org

  7. European Cancer Patient Coalition (ECPC), http://www.ecpc-online.org

  8. European Group for Blood and Marrow Transplantation: www.ebmt.org

  9. European Oncology Nursing Society, http://www.cancernurse.eu

  10. European Prostate Cancer Coalition, Europa Uomo, http://www.europa-uomo.org

  11. European Society of Gynaecological Oncology (ESGO), http://www.esgo.org

  12. European Society for Medical Oncology (ESMO), http://www.esmo.org

  13. European Society for Paediatric Oncology (SIOP), http://www.siope.eu

  14. European Society of Surgical Oncology (ESSO), http://www.essoweb.org

  15. European Society for Therapeutic Radiology and Oncology (ESTRO), http://www.estro.org

  16. International Brain Tumour Alliance (IBTA), http://www.theibta.org

  17. International Union Against Cancer (UICC), http://www.uicc.org UICC - Sign The Declaration

  18. MYELOMA EURONET A.i.s.b.l(ME) Leukaemiehilfe RHEIN-MAIN e.V. (LHRM), http://www.myeloma-euronet.org

Please download the files above and then send us an email with your comments.

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