The attached document provides a definition of rare cancers and explains the criteria used for defining the cancer entities shown in the list.
Rationale and Questions for Consensus - download PDF 
Please download the file above and then send us an email with your comments.
| Send us an email with your comments |  |
This is the list of tumour entities from which rare tumours are identified as those with incidence less than 6 per 100,000 persons / year. The list presents the number of cases reported by European cancer registries during the period 1995-2002 and the corresponding incidence rates. Both figures are derived from the data of 70 population-based cancer registries adhering to the RARECARE project.
RARECARE list.
This list includes information on all cancers
defined by the RARECARE project. Please note that rare cancers are only those with an incidence of <6/100.000
Download RARECARE List Excel spreadsheet 
Experts for the Definition of Rare Cancers / Rare Cancers List - download PDF
Please download the files above and then send us an email with your comments.
| Send us an email with your comments | |